Patient Stories

´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…

TIF’s Expert Patient and long-standing collaborator and friend, Maria Hadjidemetriou, shares her inspiring and thought-provoking journey with thalassaemia and reflects on the lessons it has taught her. Click on the…

  “My family is from Greece originally but I was born and grew up in Wales, a country which even today has very few thalassaemia patients. When I was born…

This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia back in the 50’s-60’s, when no drugs and medical treatments…

Winner Story #3 – International Thalassaemia Day 2019    »I was born in a small village in Bangladesh. Four years later, one renowned child specialist diagnosed me as E-beta thalassaemia…