Education
PK Deficiency Resources Now Available On TIF’s Website
Actualités
novembre 17, 2020
PK Deficiency Resources Now Available On TIF’s Website
Recognizing the similarities of thalassaemia with other rare anaemias, particularly those affecting red blood cells, (e.g. PKD, SCD), and noting the absence of disease-specific united internationally coordinated patient organizations to…
Coming Up This Week: »Iron Monitoring in Thalassaemia » Webinar for Patients
Actualités
octobre 4, 2020
Coming Up This Week: »Iron Monitoring in Thalassaemia » Webinar for Patients
Although chronic blood transfusion regimens have added decades to the lives of patients with thalassaemia, clinicians are now faced with increasingly complicated management challenges. The devastating effect of the accumulated…
The 1st TIF Webinar for Medical Specialists Scheduled for 11 May
Actualités
mai 16, 2020
The 1st TIF Webinar for Medical Specialists Scheduled for 11 May
The 1st webinar for Medical Specialists organised in the context of TIF’s eThalEd online course has just arrived! Dr Antonio Piga, Professor of Paediatrics & Dean of the Medicine School at…
Thalassaemia from ‘A’ to ‘Z’: A comprehensive e-glossary for patients with thalassaemia (2019)
TIF Publications
décembre 6, 2019
Thalassaemia from ‘A’ to ‘Z’: A comprehensive e-glossary for patients with thalassaemia (2019)
The “Thalassaemia from A to Z” electronic glossary is a comprehensive, easy to use, educational tool for thalassaemia, including definitions of all important concepts on the prevention, management, treatment, organ…
Gene Therapy in β-thalassaemia and other haemoglobin disorders (2019)
Publications
septembre 3, 2019
Gene Therapy in β-thalassaemia and other haemoglobin disorders (2019)
An educational leaflet aiming to strengthen the knowledge and understanding of patients with thalassaemia and other haemoglobin disorders across the world on most aspects relevant to gene therapy.
Bone Marrow Transplantation in β-thalassaemia (2018)
Publications
mai 15, 2019
Bone Marrow Transplantation in β-thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), more commonly known as bone marrow transplantation (BMT).
Guidelines for the Management of Non-Transfusion Dependent Thalassaemias (2nd edition – 2017)
TIF Publications
octobre 24, 2017
Guidelines for the Management of Non-Transfusion Dependent Thalassaemias (2nd edition – 2017)
EDITORS OF THE 2nd EDITION Ali Taher Khaled Musallam Maria Domenica Cappellini
A Short Guide for the Management of Transfusion Dependent Thalassaemia (2017)
TIF Publications
octobre 24, 2017
A Short Guide for the Management of Transfusion Dependent Thalassaemia (2017)
Farmakis, D. Angastiniotis, M. Eleftheriou, A.