World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia.
Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related to proper care to the wider public.
This year, the World Federation of Hemophilia (WFH) is focusing on reaching out and identifying new members of the bleeding disorders community. For many years, the WFH has supported outreach projects in different countries and conducted educational events for both lay and health care professionals.
World Hemophilia Day 2019 activities include a global campaign to light up landmarks around the world in red, as has been done successfully in the past. Members of the community, partners and national member organizations (NMOs) will come together so that local landmarks will « light it upred » on April 17. Many people will also light a red light in their home or office in an individual effort to raise awareness in their community.
Celebrate World Hemophilia Day with the WFH World Hemophilia Day 2019 press release World Hemophilia Day Social Media Toolkit