This Annual Report showcases the Federation’s intensive efforts that took place in 2019 with the aim to ensure equal access to quality healthcare for every patient with thalassaemia and haemoglobin disorders across the world.
We invite readers to navigate through the numerous and diverse global activities TIF organised throughout the year, with a sharp focus on making the patients´ voice heard at all levels and improving their lives worldwide.
2019 was a substantial year for the history of thalassaemia, marked by the highly’encouraging results of novel and innovative therapies for the disease. However, as Dr Androulla Eleftheriou, TIF´s Executive Director, affirms: »Undoubtedly, this is not the end of the road, but merely the beginning. The Federation will continue to advocate, with the same commitment, passion and sensitivity and to collaborate closely and productively with every single involved stakeholder to ensure that such ground-breaking research advances are not only made available, but also accessible to patients in need across the world. »
Read the Full TIF Annual Report for 2019 HERE