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  • ActualitésPhoto de Time To Get Ready For Rare Disease Day 2021!
    il y a 6 jours

    Time To Get Ready For Rare Disease Day 2021!

    TIF joins forces with 300 million people around the world for the global observance of Rare Disease Day, coming up…

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  • ActualitésPhoto de TIF’s Public Statement on Current Developments in Gene Therapy SCD Clinical Trials and Thalassaemia Gene Therapy Zynteglo
    il y a 1 semaine

    TIF’s Public Statement on Current Developments in Gene Therapy SCD Clinical Trials and Thalassaemia Gene Therapy Zynteglo

    The Thalassaemia International Federation (TIF) has been informed through official communication by both the European Medicines Agency (EMA) and bluebird…

    Lire la suite »
  • ActualitésPhoto de Meetings
    il y a 2 semaines

    Meetings

    Lire la suite »
  • ActualitésPhoto de NOW PUBLISHED: The TIF ‘’Gene Therapy & Thalassaemia’’ Survey Report
    il y a 2 semaines

    NOW PUBLISHED: The TIF ‘’Gene Therapy & Thalassaemia’’ Survey Report

    Gene therapy for thalassaemia is an expensive and complex procedure, with great efforts ongoing currently by all involved stakeholders, such…

    Lire la suite »
  • ActualitésPhoto de TIF’s Point of View: Medicines Regulatory Systems – Continued Strengthening Is Required
    il y a 3 semaines

    TIF’s Point of View: Medicines Regulatory Systems – Continued Strengthening Is Required

    Access to quality-assured medical products improves health and saves lives. Nevertheless, one third of the world’s population lacks timely access…

    Lire la suite »
  • ActualitésPhoto de TIF Supports IAPO´s Call For The Ratification Of The African Medicines Agency Treaty
    il y a 3 semaines

    TIF Supports IAPO´s Call For The Ratification Of The African Medicines Agency Treaty

    Two years after the Treaty to establish an African Medicines Agency was agreed, over 40 leading organizations, including the Thalassaemia…

    Lire la suite »
  • ActualitésPhoto de The Lancet: Russian Coronavirus Sputnik V Vaccine Achieves Over 90% Efficacy
    il y a 4 semaines

    The Lancet: Russian Coronavirus Sputnik V Vaccine Achieves Over 90% Efficacy

    Russia’s Sputnik V vaccine was 91.6% effective in preventing people from developing Covid-19, according to peer-reviewed results from its late-stage…

    Lire la suite »
  • ActualitésPhoto de EMA Accepts MAA For Oxbryta To Treat Haemolytic Anaemia In Sickle Cell Disease
    janvier 31, 2021

    EMA Accepts MAA For Oxbryta To Treat Haemolytic Anaemia In Sickle Cell Disease

    The European Medicines Agency (EMA) has accepted Global Blood Therapeutics (GBT) marketing authorisation application (MAA) for Oxbryta® (voxelotor) for the treatment…

    Lire la suite »
  • ActualitésPhoto de TIF Updated Vaccinations & Therapeutic Drugs COVID-19 Guide Has Landed
    janvier 29, 2021

    TIF Updated Vaccinations & Therapeutic Drugs COVID-19 Guide Has Landed

    A comprehensive Guide for both existing and developing vaccines and treatments against COVID-19, exclusively developed by TIF for its global…

    Lire la suite »
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