TIF Activities

Fueling the spirit of the International Thalassaemia Day 2020 and in addition to the online activities of the 8th of May, TIF will organize a series of other events & activities that are now scheduled for 8 September 2020, due to the coronavirus crisis.

A SPECIAL VIRTUAL DISCUSSION FOR THE ITD2020 :

A special pre-recorded Virtual Discussion will be available for you to watch on our YouTube Channel http://bit.ly/2Vq93N3

9 Patient Advocates from various countries will discuss with TIF the accessibility and affordability of the new and Innovative Therapies for thalassaemia, as well as the patient-related challenges of the COVID19 pandemic!

 

TIF will be represented by its Executive Director, Dr Androulla Eleftheriou, and Medical Advisor, Dr Michael Angastiniotis and our Patients’ Panel consists of:

Mr Seymour Baghbanli, Azerbaijan
Mr Riyad Elbard, Canada
Mr Ali Sattarpour, France
Mr Kostas Tsurlis, Germany
Ms Anubha Taneja Mukherjee, India
Ms Caecilia Maria Natasha, Indonesia
Ms Fazalena Sarawak, Malaysia
Mr Issa Ali, Trinidad & Tobago
and Mr George Constantinou, UK

VIDEO CHALLENGE & WRITING CONTEST:

Until today the only therapeutic option for a patient with thalassaemia was Allogeneic Hematopoietic Stem-cell Transplantation (HSCT), more commonly known as Bone Marrow Transplantation (BMT).

Now a new era for the treatment of thalassaemia has started.  New promising therapeutic approaches might revolutionize the management of patients with thalassemia, mainly with the most severe forms of the disease, with good chances of improving the quality of life and survival of many patients.

But what is the patients’ perspective on all these novel advances?

We are asking you to share with us your thoughts and feelings about them through a video or written text for the International Thalassaemia Day 2020 Contests!

 

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