TIF Publications

Explaining Gene Therapy in thalassaemia (2020)

Explaining Gene Therapy in thalassaemia (2020)

The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an  »at-risk » couple to have a child without the disease.
COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document, prepared by the Thalassaemia International Federation , is a compilation of information exclusively for Sickle Cell Disease patients with regard to the coronavirus pandemic.
COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

A TIF-compiled document aiming to provide a division of risk levels for thalassaemia and SCD patients with regards to the ongoing COVID-19 pandemic.
WEEKLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

WEEKLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

All the latest updates of TIF’s Vaccinations & Therapeutic Drugs Guide for COVID-19 gathered in one single document.
Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

TIF has compiled a list of studies/clinical trials for developing drugs and vaccines for the COVID-19 Pandemic, which is by no means exhaustive as research in this area is dramatically…
Blood & COVID-19 (2020)

Blood & COVID-19 (2020)

An informational guide about blood adequacy and safety during the COVID-19 Pandemic, compiled on the basis of official recommendations from internationally recognized bodies.
A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A  Haemoglobinopathy Patient Care Pathway suggesting changes to be made during the outbreak of COVID-19 in the admittance of patients to haemoglobinopathy day care centres /units /clinics.
The COVID-19 Pandemic & Haemoglobin Disorders (2020)

The COVID-19 Pandemic & Haemoglobin Disorders (2020)

An informational leaflet about the new COVID-19 with a special focus to the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
Thalassaemia from ‘A’ to ‘Z’: A comprehensive e-glossary for patients with thalassaemia (2019)

Thalassaemia from ‘A’ to ‘Z’: A comprehensive e-glossary for patients with thalassaemia (2019)

The “Thalassaemia from A to Z” electronic glossary is a comprehensive, easy to use, educational tool for thalassaemia, including definitions of all important concepts on the prevention, management, treatment, organ…
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