Press Releases

Juggling Between The Cost And Value of New Therapies: Does Science Still Serve Patient Needs?

Juggling Between The Cost And Value of New Therapies: Does Science Still Serve Patient Needs?

In the aftermath of the withdrawal of Zynteglo, the first gene therapy for patients with β-thalassaemia, from Europe, TIF´s Executive Director, Dr Androulla Eleftheriou, reflects on the viability of the…
International Thalassaemia Day 2021: Official Global Press Release

International Thalassaemia Day 2021: Official Global Press Release

On International Thalassaemia Day, TIF shines a light on the striking health inequalities that affect the global thalassaemia community, further accentuated by the ongoing coronavirus pandemic. NICOSIA, May 5, 2021/Thalassaemia International…
TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia

TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia

The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™) for transfusion-dependent thalassaemia patients, announced last week. The Federation’s distress…
TIF leads the way in creating a Community Advisory Board (CAB) in Europe for thalassaemia and sickle cell disease

TIF leads the way in creating a Community Advisory Board (CAB) in Europe for thalassaemia and sickle cell disease

  ANNOUNCEMENT:   Dear friends and esteemed collaborators, The Thalassaemia International Federation (TIF) since its establishment in 1986 has been a pioneer in providing the patients’ perspective in all health-related…
Sir David Weatherall, an ‘iconic’ scientist who carried out groundbreaking work in thalassaemia, dies

Sir David Weatherall, an ‘iconic’ scientist who carried out groundbreaking work in thalassaemia, dies

The international scientific and research community is mourning the loss of Sir David Weatherall, the highly-regarded British clinical scientist and haematologist whose studies focused on haemoglobin disorders and thalassaemia. His…
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