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Déc- 2019 -21 décembreConferences
CAPACITY, COMPETENCE & CONFIDENCE WORKSHOP FOR PATIENT ORGANISATIONS | 12-13 October 2019
Aiming at the continuous training of patients on issues relevant to the management of thalassaemia and other haemoglobinopathies, as well…
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6 décembreTIF Publications
Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects…
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Nov- 2019 -14 novembre
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Juil- 2019 -22 juilletPatients’ stories
FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 »I was born in a small village in Bangladesh. Four years…
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21 juilletPatients’ stories
LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia
Winner Story #2 – International Thalassaemia Day 2019 »I had been diagnosed with thalassaemia major at the age of…
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19 juilletPatients’ stories
THE BRIDGE TO A CURE by Linda Brown
Winner Story #1 – International Thalassaemia Day 2019 »There’s a certain uniqueness to raising a child with a genetic…
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Août- 2017 -5 août
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5 août
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5 août
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5 août
