TIF News
PK Deficiency Resources Now Available On TIF’s Website
Νέα
1 εβδομάδα ago
PK Deficiency Resources Now Available On TIF’s Website
Recognizing the similarities of thalassaemia with other rare anaemias, particularly those affecting red blood cells, (e.g. PKD, SCD), and noting the absence of disease-specific united internationally coordinated patient organizations to…
Cyprus President Anastasiades Welcomed A TIF Delegation
Νέα
1 εβδομάδα ago
Cyprus President Anastasiades Welcomed A TIF Delegation
An official meeting with the President of the Republic of Cyprus, Mr. Nicos Anastasiades, was held this morning by a delegation of the Thalassaemia International Federation, headed by the President…
Leave No Patient Behind: A TIF Declaration For Access To Health At The Time of The COVID-19 Pandemic
Νέα
2 εβδομάδες ago
Leave No Patient Behind: A TIF Declaration For Access To Health At The Time of The COVID-19 Pandemic
Download the TIF Declaration HERE
TIF At The NORBS Online Regional Conference For Rare Diseases – 23 0ctober 2020
Νέα
26 Οκτωβρίου, 2020
TIF At The NORBS Online Regional Conference For Rare Diseases – 23 0ctober 2020
Supporting Serbia and other Eastern European countries in their efforts to upgrade holistic care services for patients with rare diseases, including thalassemia, TIF’s Executive Director, Dr Androulla Eleftheriou, participated on…
TIF Participates in EMA’s Annual Training Day 2020
Νέα
24 Οκτωβρίου, 2020
TIF Participates in EMA’s Annual Training Day 2020
TIF has participated in the Annual Training Day of the European Medicines Agency (EMA), held on 23 October 2020. TIF participants, Ms Lily Cannon (TIF Operations Manager) and Ms Eleni…
TIF Webinar Fridays Are Back With A New Session on “Heart Disease In Thalassaemia”
Νέα
20 Οκτωβρίου, 2020
TIF Webinar Fridays Are Back With A New Session on “Heart Disease In Thalassaemia”
This Friday, 23 October 2020, at 15:00 EEST/13:00 BST, get ready to join Prof. Malcolm Walker and Dr. Dimitris Farmakis in our webinar on ”Heart Disease In Thalassaemia” for Patients/Parents,…
TIF Develops Mobile Application To Support Patients With Thalassaemia
Νέα
6 Οκτωβρίου, 2020
TIF Develops Mobile Application To Support Patients With Thalassaemia
As part of its enduring efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF will soon introduce a novel mobile health application, named ‘’THALIA Mobile…