THALIA
Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
Νέα
13 Μαΐου, 2021
Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
In occasion of the International Thalassaemia Day 2021, Ali Sattarpour, 45, France, Fédération SOS GLOBI Vice President and TIF’s Thalassaemia Patient Advocacy Group (T-PAG) Member, recounts a life of struggles,…
THALIA App: The Skilled Digital Assistant of People with Thalassaemia and Sickle Cell Disease
Νέα
22 Δεκεμβρίου, 2020
THALIA App: The Skilled Digital Assistant of People with Thalassaemia and Sickle Cell Disease
Committed to continuing efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF introduces a novel mobile health application for patients with thalassaemia and sickle cell…
TIF Develops Mobile Application To Support Patients With Thalassaemia
Νέα
6 Οκτωβρίου, 2020
TIF Develops Mobile Application To Support Patients With Thalassaemia
As part of its enduring efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF will soon introduce a novel mobile health application, named ‘’THALIA Mobile…
Revisiting The Use and Management of Blood in Europe in Times of Crisis and Beyond
Νέα
14 Σεπτεμβρίου, 2020
Revisiting The Use and Management of Blood in Europe in Times of Crisis and Beyond
About 25 million blood transfusions are administered to patients every year throughout the European Union. What may come to mind to most people when thinking about blood transfusion is acute…
”Blood Transfusion in Thalassaemia”: Save the Date for the Next TIF Webinar for Medical Specialists
Νέα
30 Ιουλίου, 2020
”Blood Transfusion in Thalassaemia”: Save the Date for the Next TIF Webinar for Medical Specialists
TIF´s brand new Webinar, entitled ”Blood Transfusion in Thalassaemia” and organised as part of the eThalED Course, will be held on Monday, 31 August 2020, 15:00-16:00 EEST / 13:00-14:00 BST.…
THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
Patients’ stories
21 Ιουλίου, 2020
THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…