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RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases

 Rare Disease Day 2022 is observed on February 28 around the world.


Rare Disease Day is the movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease everywhere in the world. Rare diseases are not so ‘rare’ as their name suggests, given that there are more than 7,000 different diseases, many of which have no treatment, that affect over 300 million people globally. Among them is β-thalassaemia, still considered a rare disease in certain regions of the world, such as Europe, despite its being one of the most common autosomal recessive disorders globally.

Get Involved in Rare Disease Day 2022 HERE

 


TIF to Take Part in the 2nd International Conference on Rare Diseases: The Greek Chapter

 

TIF will actively participate in the upcoming ”2nd International Conference on Rare Diseases: The Greek Chapter”, to take place virtually on March 1-2, in the context of #RareDiseaseDay 2022.
The Conference, organised by Rare Alliance Greece, under the patronage of  European Rare Diseases Organisation (EURORDIS) and with the support of many other stakeholders, aims to spark dialogue on current challenges for rare diseases and promote a common action plan that will help balance equity and sustainability across all EU countries on the front of combatting rare diseases.
Dr Androulla Eleftheriou, TIF’s Executive Director, will join Dr Stelios Kympouropoulos, Member of the European Parliament, Mr Andrzej Jan Rys, Director for Health Systems, Medical Products and Innovation, European Commission, and Mrs Alba Ancochea, Eurordis BoD Member, in the panel discussion of the 1st Conference Session.
On March 2, Mrs Eleni Antoniou, TIF Senior Policy Officer, will discuss new funding models for access.

 

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