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Thalassemia Foundation of Canada to Host its National Thalassemia Conference on October 23-24

Thalassemia Foundation of Canada to Host its National Thalassemia Conference on October 23-24

The Thalassemia Foundation of Canada, a long-time member of TIF, will be holding its 2-day Virtual National Conference on Thalassaemia this weekend, October 23-24, at 12:00-16:00 EDT. The Conference aims at…
TIF Releases New Scientific Bulletin To Highlight Research On Haemoglobin Disorders

TIF Releases New Scientific Bulletin To Highlight Research On Haemoglobin Disorders

A key objective of the Thalassaemia International Federation is to inform and update regularly the global haemoglobinopathies family, both patients and physicians, on the progress and new developments that arise…
Juggling Between The Cost And Value of New Therapies: Does Science Still Serve Patient Needs?

Juggling Between The Cost And Value of New Therapies: Does Science Still Serve Patient Needs?

In the aftermath of the withdrawal of Zynteglo, the first gene therapy for patients with β-thalassaemia, from Europe, TIF´s Executive Director, Dr Androulla Eleftheriou, reflects on the viability of the…
Coming Up This Thursday: Discussion On Access To Innovative Therapies – The Reblozyl Case

Coming Up This Thursday: Discussion On Access To Innovative Therapies – The Reblozyl Case

After receiving numerous questions from patients regarding the innovative treatment for β-thalassaemia Reblozyl (luspatercept), approved for use in the US, Europe, and Canada, TIF proceeds to organise an interactive, online…
UK & Wales: NICE Recommends First Treatment In Two Decades For Sickle Cell Disease

UK & Wales: NICE Recommends First Treatment In Two Decades For Sickle Cell Disease

For the first time in 20 years, a new therapy for sickle cell disease is to be made available on the UK National Health Service (NHS). Crizanlizumab (Adakveo) by Novartis…
WHO SEARO Publishes Desk Review of Haemoglobinopathies in the South-East Asia Region

WHO SEARO Publishes Desk Review of Haemoglobinopathies in the South-East Asia Region

In an effort to understand the prevalence of thalassaemic syndromes and the existent blood supply system available within each country of the South-East Asia Region, the WHO Regional Office for…
World Patient Safety Day 2021: Act Now For Safe And Respectful Childbirth

World Patient Safety Day 2021: Act Now For Safe And Respectful Childbirth

With the world still battling with the COVID-19 pandemic and the inequities that surfaced as a result, the most vulnerable and marginalized populations are being disproportionately affected due to both…
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