Mrs Shobha Tuli is the founder member of Thalassaemics India, established in 1987 in New Delhi. She served as Junior Secretary of Thalassaemics India until 1992, whilst since 1993 she is serving as Secretary of the Board of Directors of Thalassaemics India. In 1993 she supported the establishment of the ‘Preeti Tuli Thalassaemia Unit’ at Sir Ganga Ram Hospital in New Delhi, named after her late daughter.
Thalassaemics India received the ‘Best Social Organisation Award’ in 1998 from the Ministry of Health. She is one of the contributors in developing Guidelines on Prevention & Control of Hemoglobinopathies in India by the MoHFW, Govt. of India.
She has been member of the Board of Directors of Thalassaemia International Federation since 1996 representing Thalassaemics India. Since 2000, she has served as President of the Federation of Indian Thalassaemia Associations and is currently holding the position of Vice President on TIF’s Board.
In 1999, she received the ‘George Englezos award’ from Thalassaemia International Federation in the course of the International Conference on Thalassaemia in Bangkok-Thailand, for her extraordinary services to thalassaemia patients in India.