Home » Author Archives: Catherine Skari

Author Archives: Catherine Skari

Bluebird puts €1.58m price on gene therapy Zynteglo

  Bluebird bio Inc. set a price for its gene therapy, Zynteglo, at 1.58 million euros ($1.78 million) over five years, after winning conditional approval in Europe earlier this month to to treat patients 12 years and older with transfusion-dependent β-thalassaemia (TDT), who have no matching donor for a stem ...

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FROM PUMP TO PILL by Chanapa Tantibanchachai

Winner Story #1 – International Thalassaemia Day 2018   »As I reflect on my past, present and future as a thalassemia patient, I can’t help but be in complete awe of the clinical advances that have been made just in the past two and a half decades that I’ve been ...

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مييا حمااكة واقعي مع الثالس by Hanady Alsanwi

Winner Story #2– International Thalassaemia Day 2018   متكرر ما بني الفرتة واألخرى ونظرات ً ال يفارق جسدي ونقل دما ً للمستشفى وآملا يف اعني و الدي ً خوفا و صعوبة احلياة اجلسدية واحلياة الواقعية يف ظل احلروب الدائمة يف بالدنا وصعوبة العيش وانقطاع االدوية بشكل مستمر , اصبح اآلمل ...

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World Blood Donor Day – 14 June 2019

This year, World Blood Donor Day will once again be celebrated around the world on 14 June! The event serves to thank voluntary, unpaid blood donors for their life-saving gifts of blood and also to raise awareness of the need for regular blood donations to ensure that all individuals and ...

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TIF to organize a Capacity Building Workshop for Patients’ Organizations and individuals with thalassaemia in October 2019!

  This fall TIF is coming to Germany✈️✈️ and is more than excited to announce its forthcoming Capacity Building Workshop for Patients’ Associations and people with thalassaemia and other haemoglobinopathies, which will take place on 11-13 October, 2019 in Hamburg, Germany!!! Sponsorship opportunities are available to #patients with thalassaemia from countries ...

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TIF’s e-registry for patients with thalassaemia is ready for piloting

  TIF with support from Celgene Corporation, has developed a disease specific e-registry with health record for patients with thalassaemia. This e-registry is now completed, as a first version, and is ready to be piloted in selected centres in Cyprus, Greece and Bulgaria. After piloting and user comments, the e-registry ...

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