Patients

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)
TIF Publications

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document, prepared by the Thalassaemia International Federation , is a compilation of information exclusively for Sickle Cell Disease patients with regard to the coronavirus pandemic.
WORLD BLOOD DONOR DAY 2020: Give blood and make the world a healthier place
News

WORLD BLOOD DONOR DAY 2020: Give blood and make the world a healthier place

On 14 June 2020 WHO and all countries worldwide will celebrate World Blood Donor Day!   The campaign theme for this year’s World Blood Donor Day is “Safe blood saves…
IGNORANCE ISN’T BLISS by Jensen Chan
Patients’ stories

IGNORANCE ISN’T BLISS by Jensen Chan

“Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never had any fitness or health issues. However, at age 16,…
”Why I decided to increase awareness about thalassaemia in Singapore”: The story of Jensen Chan
News

”Why I decided to increase awareness about thalassaemia in Singapore”: The story of Jensen Chan

”I was shocked at the huge discrepancy between how common thalassaemia is and how few people actually know about it.” Jensen Chan, a University student from Singapore, explains how his…
FDA Approves New Formulation for Ferriprox (Deferiprone) Twice-a-Day Tablets
Clinical News

FDA Approves New Formulation for Ferriprox (Deferiprone) Twice-a-Day Tablets

Chiesi Global Rare Diseases, a business unit of Chiesi Farmaceutici S.p.A., today announced that the U.S. Food and Drug Administration (FDA) has approved Ferriprox® (deferiprone) twice-a-day tablets for the treatment…
TIF ITD2020 Webinar: The Patients‘ Perspective on the Accessibility & Affordability of Novel Therapies for Thalassaemia
News

TIF ITD2020 Webinar: The Patients‘ Perspective on the Accessibility & Affordability of Novel Therapies for Thalassaemia

9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the…
COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe
News

COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe

Patient Advocates from Greece, Germany, the UK, the Netherlands, Romania and other countries of the WHO European Region exchange thoughts and opinions with TIF about the daunting challenges and concerns…
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