Haemoglobin Disorders
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News
GoCART Coalition: EHA and EBMT Join Forces To Position Europe In The Lead Of The Global Cellular Therapy Field
The European Hematology Association (EHA) and the European Society of Blood and Marrow Transplantation (EBMT) announce a strategic partnership to empower Europe to become a global leader in the cellular…
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News
The eThalED Course Webinar Series Return With a New Session on Iron Monitoring in Thalassaemia
TIF´s upcoming webinar on “Iron Monitoring in Thalassaemia“, specially designed and launched for medical specialists and healthcare professionals with a particular interest in the field of haemoglobin disorders and thalassaemia,…
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TIF Publications
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an “at-risk“ couple to have a child without the disease.
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News
JUST LANDED: The “Prevention of Inherited Diseases – The Example of β-Thalassaemi“ Educational Brochure by TIF
Prevention is the only measure that can drastically reduce the incidencies of severe haemoglobin disorders, such as β-thalassaemia. It is also what allowed countries like Greece, Italy and Cyprus to go from…
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News
Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients‘ Perspective
9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the…
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COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe
Patient Advocates from Greece, Germany, the UK, the Netherlands, Romania and other countries of the WHO European Region exchange thoughts and opinions with TIF about the daunting challenges and concerns…
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