Gene Therapy
Advances in the Care & Cure of Thalassaemia: New Hopes & Challenges
News
Juli 1, 2020
Advances in the Care & Cure of Thalassaemia: New Hopes & Challenges
TIF, in collaboration with Thalassemics India and Thalassemia Patients Advovacy Group – India, conducted on June 12, 2020 a Webinar on the novel treatments emerging for thalassaemia and the hopes…
Gene Therapy & Thalassaemia
Surveys
Juni 29, 2020
Gene Therapy & Thalassaemia
Millions of people worldwide suffer from inherited non-malignant blood disorders like thalassaemia and sickle cell disease. The culprit: genetic defects in their blood stem cells. One of the novel…
Explaining Gene Therapy in thalassaemia (2020)
Publications
Juni 7, 2020
Explaining Gene Therapy in thalassaemia (2020)
The second educational brochure from the TIF’s ‚Gene Therapy‘ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
The Patients‘ Perspective on the Accessibility & Affordability of Novel Therapies for Thalassaemia
News
Mai 20, 2020
The Patients‘ Perspective on the Accessibility & Affordability of Novel Therapies for Thalassaemia
9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the…
Gene Therapy in β-thalassaemia and other haemoglobin disorders (2019)
Publications
September 3, 2019
Gene Therapy in β-thalassaemia and other haemoglobin disorders (2019)
An educational leaflet aiming to strengthen the knowledge and understanding of patients with thalassaemia and other haemoglobin disorders across the world on most aspects relevant to gene therapy.