Tag Archives: Featured

Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s Expert Advisor, Dr. Carsten Werner Lederer, explores this critical issue in his article, by highlighting the recent conditional approval for ...

World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together ...

This is how this year’s voting results were shaped: Universal access to quality thalassaemia healthcare services: Building bridges with and for patients (Winning theme, 196 votes) Patients’ voice at the frontline: Advocating for a better future in thalassaemia care and management (112 votes) The globalization of thalassaemia – Common challenges ...

  ANNOUNCEMENT:   Dear friends and esteemed collaborators, The Thalassaemia International Federation (TIF) since its establishment in 1986 has been a pioneer in providing the patients’ perspective in all health-related areas including policy-making, research, clinical trials, drug development etc, in a transparent manner, as laid out by its Code of ...

  The Egyptian Thalassaemia Association (ETA),  in celebration of this year’s International Thalassaemia Day, is organizing the 20th International Thalassaemia Day Conference to be held in Cairo on May, 1-2, 2019. Renowned international and national scientists working in the field, among which Dr. Frempong, one of the pioneers of sickle ...

  The European Medicines Agency (EMA) has published a booklet describing the journey of a medicine for human use authorised through EMA, from initial research to discussions on patient access to medicines across the EU. The booklet’s title is “From laboratory to patient: the journey of a centrally authorised medicine“ ...

At TIF we believe that well-informed patients are able to gain in-depth understanding of their condition and make purposeful decisions about their health! That being so, we are pleased to announce that registrations for the upcoming 6th class of its Thal e-Course for patients are now open! You can access the registration form here 👉 http://bit.ly/2BVkX9c    

  The Mumbai Hematology Group is organizing the 7th Thalassaemia Lunch-On Symposium on the 27th April 2019 in Mumbai, India. The Symposium will be covering several topics germane to thalassaemia, including expert sessions dedicated to the clinical management, multidisciplinary care, and springing up challenges and therapies of the disease. The meeting is ...