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The Patients‘ Perspective on the Accessibility & Affordability of Novel Therapies for Thalassaemia

9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with the Thalassaemia International Federation the accessibility and affordability of the new and innovative Therapies for the disease, as well as the COVID-19 pandemic challenges in their respective countries.

With the participation of: Mr Seymour Baghbanli, Azerbaijan, Mr Riyad Elbard, Canada, Mr Ali Sattarpour, France, Mr Kostas Tsurlis, Germany, Ms Anubha Taneja Mukherjee, India, Ms Caecilia Maria Natasha, Indonesia, Ms Fazalena Sarawak, Malaysia, Mr Issa Ali, Trinidad & Tobago, Mr George Constantinou, UK, and Dr Androulla Eleftheriou, Executive Director & Dr Michael Angastiniotis, Medical Advisor, on behalf of TIF.

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