TIF Publications
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Potentially Curative Approaches for β-Thalassaemia (2021)
A TIF-developed infographic providing a head-to-head comparison on the most essential aspects of BMT, Gene Therapy & Gene Editing as potentially curative procedures for patients with β-thalassaemia. English
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Explaining Gene Therapy in thalassaemia (2020)
The second educational brochure from the TIF’s ‚Gene Therapy‘ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major. English French German Italian
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Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an “at-risk“ couple to have a child without the disease. English Bengali
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COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)
This document, prepared by the Thalassaemia International Federation , is a compilation of information exclusively for Sickle Cell Disease patients with regard to the coronavirus pandemic. English
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COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)
A TIF-compiled document aiming to provide a division of risk levels for thalassaemia and SCD patients with regards to the ongoing COVID-19 pandemic. English Greek
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Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)
TIF has compiled a list of studies/clinical trials for developing drugs and vaccines for the COVID-19 Pandemic, which is by no means exhaustive as research in this area is dramatically…
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Blood & COVID-19 (2020)
An informational guide about blood adequacy and safety during the COVID-19 Pandemic, compiled on the basis of official recommendations from internationally recognized bodies. English Arabic Greek Italian
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A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)
A Haemoglobinopathy Patient Care Pathway suggesting changes to be made during the outbreak of COVID-19 in the admittance of patients to haemoglobinopathy daycare centres /units /clinics. English Greek
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The COVID-19 Pandemic & Haemoglobin Disorders (2020)
An informational leaflet about the new COVID-19 with a special focus to the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD). English Αrabic Farsi French…
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Thalassaemia from ‚A‘ to ‚Z‘: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
The “Thalassaemia from A to Z” electronic glossary is a comprehensive, easy-to-use, educational tool for thalassaemia, including definitions of all important concepts on the prevention, management, treatment, organ complications, and…
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