TIF News-todelete
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A Useful Health & Nutrition Short Guide for the COVID-19 Pandemic by TIF
The coronavirus presents many uncertainties, and none of us can completely eliminate the risk of getting infected with COVID-19. Nevertheless, one thing we can do is eat as healthy as…
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TIF’s latest Newletter is out now!
Catch up with our most recent newsletter and get informed about TIF’S activities and achievements in the past few months! If you would also like to receive our news directly…
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TIF organises the‘’1st International Informational Forum on New & Innovative Therapies for Haemoglobinopathies’’_12 December 2019
In light of the rapid scientific developments in the field of thalassaemia and Sickle Cell Disease (SCD) – new drugs and gene therapies – which promise to change the…
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TIF by the side of thalassaemia patients in Syria
The World Health Organisation (WHO) has contacted the Thalassaemia International Federation (TIF) to request the provision of its expertise and technical support on the thalassaemia care and management of…
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FDA Grants Priority Review to Potential Sickle Cell Disease Treatment Voxelotor
The Food and Drug Administration (FDA) will review an approval application for a drug designed to target the root cause of damage from sickle cell disease (SCD). South San…
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TIF releases new video on thalassaemia prevention
Thalassaemia is a hereditary blood disease that CAN be prevented! But in what ways? ΤΙF’s latest educational video shines a spotlight on the essential aspect of the disease’s prevention,…
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International Thalassaemia Day: More than 1 in 10 Cypriots carriers of β-thalassaemia
A comprehensive article by Carsten W. Lederer (PhD), Petros Patsali (PhD), Panayiota Papasavva (MD, MSc), Thessalia Papasavva (PhD) and Marina Kleanthous (PhD, Head of the MGTD), on the thalassaemia…
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Gene Therapy for β-Thalassaemia Approaches European Market Approval
Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s…
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TIF to organize a Capacity Building Workshop for Patients‘ Organizations and individuals with thalassaemia in October 2019!
This fall TIF is coming to Germany✈️✈️ and is more than excited to announce its forthcoming Capacity Building Workshop for Patients’ Associations and people with thalassaemia and other haemoglobinopathies,…
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