TIF Publications

August 1, 2022

A Short Guide for the Management of Transfusion-Dependent Thalassaemia (2nd edition – 2022)

Prepared by: Farmakis, D. Reviewed by: Eleſtheriou, A., Bain, B.

März 18, 2021

Potentially Curative Approaches for β-Thalassaemia (2021)

A comprehensive infographic with a head-to-head comparison on the most essential aspects of BMT, Gene Therapy & Gene Editing as potentially curative procedures for patients with β-thalassaemia.

Juni 3, 2020

Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an “at-risk“ couple to have a child without the disease.

Mai 27, 2020

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).

Mai 16, 2020

COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

A document seeking to offer a risk level classification for thalassaemia and SCD patients in relation to the ongoing COVID-19 pandemic.

April 14, 2020

Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

A list of studies/clinical trials for developing treatments and vaccines for the COVID-19 pandemic. This list is by no means exhaustive, since research in this field is ongoing.

April 10, 2020

Blood & COVID-19 (2020)

A guide on blood adequacy and safety during the COVID-19 pandemic, based on official recommendations from internationally recognised bodies.

März 30, 2020

A TIF-proposed Haemoglobinopathy Patient Pathway During the COVID-19 Pandemic (2020)

A Patient Care Pathway recommending adjustments to be implemented in the admission of patients to haemoglobinopathy centers, units, or clinics during the COVID-19 pandemic.

März 23, 2020

The COVID-19 Pandemic & Haemoglobin Disorders (2020)

An informational leaflet about the COVID-19 pandemic with a special focus on the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).

Dezember 6, 2019

Thalassaemia from ‚A‘ to ‚Z‘: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)

An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.