News

The latest issue from the Iranian Blood Transfusion Organization’s (IBTO) newsletter is now available on TIF’s website!  

Written by Dinar Faiza (edited)   The Indonesian Thalassemia Foundation of Banyumas and the Banyumas District Government organised and launched, from November 1 to November 30, 2019, a massive pilot project of Thalassaemia Prevention Movement 2019, called “Thalassaemia Month of Banyumas“. Its theme was entitled „Banyumas Goes To Zero Growth ...

  The Emirates Thalassemia Society (ETS), a prominent TIF’s Member, in collaboration with the United Arab Emirates‘ Ministry of Education, is organising the 12th Season of  the “What is Thalassemia?“ Competition. The competition has been running successfully in all the schools, universities and colleges across UAE since 2007. It has ...

Global Blood Therapeutics (GBT) and Syros Pharma announced yesterday their partnership to discover, develop and commercialize novel therapies for SickleCell Disease (SCD) and β-thalassaemia.  Under the agreement, Syros will use its leading gene control platform to identify therapeutic targets and discover drugs that induce fetal hemoglobin, and GBT will receive ...

  The World Health Organisation (WHO) has contacted the Thalassaemia International Federation (TIF) to request the provision of its expertise and technical support on the thalassaemia care and management of patients in the North West Syria region. Currently, this region includes four Thalassaemia Centres with approximately 500 patients. These patients ...

A new and encouraging chapter is finally opening up for patients with thalassaemia, following the recent approval of the US Food and Drug Administration (FDA) to market the drug Reblozyl, which aims to help patients with beta-thalassaemia major become more independent from regular, and often painful, blood transfusions. This important ...

  Celgene Corporation, Acceleron Pharma, Sangamo Therapeutics & Agios Pharmaceuticals are expected to present new and updated data on the progress of key ongoing therapies for thalassaemia and sickle cell disease (SCD) in the 61st American Society of Hematology Annual Meeting to take place in Orlando, Florida, 7-10 December 2019. ...

  The European Medicines Agency’s (EMA) has recently granted marketing authorisation for the medicinal product “Deferasirox Mylan“, intended for the treatment of chronic iron overload due to blood transfusions in patients with β-thalassaemia major, non-transfusion-dependent thalassaemia syndromes and other anaemias. The manufacturer of this medicinal product is Mylan S.A.S. “Deferasirox Mylan“ will be ...

  The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to speed the development of affordable gene therapies for sickle cell disease (SCD) and the human immunodeficiency virus (HIV) on a global scale. The collaboration between the NIH and the Gates Foundation sets ...

Scientists have raised fresh hopes for treating people with genetic disorders by inventing a powerful new molecular tool that, in principle, can correct the vast majority of mutations that cause human genetic diseases. The procedure, named “prime editing”, can mend about 89% of the 75,000 or so harmful mutations known ...