News

  The Greek Thalassaemia Federation (EOTHA), faithful to her annual appointment with patients and specialists in the field of thalassaemia, will host its 2019’s Educational Conference on September 20-22, 2019 in Ioannina, Greece. The event attracts the interest of a significant number of patients with thalassaemia and sickle cell anaemia ...

A medication used to treat high blood pressure, called Valsartan, may help decrease the stickiness of red blood cells and reduce the risk of vaso-occlusive crisis in people with sickle cell disease (SCD), a research study suggests. The study, “Valsartan impedes epinephrine-induced ICAM-4 activation on normal, sickle cell trait and sickle cell ...

Cypriot psychologist and politician to take over from Vytenis Andriukaitis on November 1 Stella Kyriakides has got the nod as EU Commissioner for Health, making her part of a strong female presence in the new structure of the next European Commission. Kyriakides, one of 13 women commissioners from 27, replaces ...

  Thalassaemia is a hereditary blood disease that CAN be prevented! But in what ways? ΤΙF’s latest educational video shines a spotlight on the essential aspect of the disease’s prevention, still challenging  in numerous countries across the world. Our goal? To further improve understanding and knowledge of the prevention’s vital ...

  Recent scientific developments in gene therapy for β-thalassaemia have brought hope that multi-transfused β-thalassaemia patients will, in the very near future, have a chance and a choice for a one-time final cure and a life without the need for treatment. The number of ongoing gene therapy clinical trials has ...

Companies involved in human gene editing have entered the ethical debate about the controversial technology, issuing a joint declaration that DNA must not be altered in a way that passes genetic changes on to future generations. The Alliance for Regenerative Medicine (ARM), an international group representing the cell and gene ...

134 million adverse events occur each year due to unsafe care in hospitals in low- and middle-income countries, contributing to 2.6 million deaths annually! Safety in health systems is a major global concern due to the enlarging numbers of people suffering avoidable harm while receiving healthcare. Recognizing the urgency of ...

  The “FAiTh- Fight Against Thalassemia“ patients & parents Association just published their 1st year activity report, after being officially registered as a trust! Read the activities report here:

  Victoria Gray, 34-year-old mother-of-four, has volunteered to be the first American to have their genes edited with the controversial CRISPR technology to treat her SickleCell disease (SCD). For the first time, doctors in the U.S. have used the powerful gene-editing technique CRISPR to try to treat a patient with a ...

World Hepatitis Day (WHD) takes places every year on 28 July bringing the world together under a single theme to raise awareness of the global burden of viral hepatitis and to influence real change. According to the World Health Organization (WHO), Viral hepatitis B and C affect 325 million people ...