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TIF’s e-registry for patients with thalassaemia is ready for piloting

TIF’s e-registry for patients with thalassaemia is ready for piloting

  TIF with support from Celgene Corporation, has developed a disease specific e-registry with health record for patients with thalassaemia. This e-registry is now completed, as a first version, and…
Gene Therapy and Thalassaemia: The Patients‘ Perspective survey!

Gene Therapy and Thalassaemia: The Patients‘ Perspective survey!

  A significant number of gene therapy approaches are currently undergoing clinical trials, some of which are already producing encouraging results. The Bluebird Bio’s gene therapy product, under the name ZYNTEGLO™,…
Living with Transfusion-Dependent β-Thalassaemia (TDT)

Living with Transfusion-Dependent β-Thalassaemia (TDT)

In its most severe form and without adequate care, thalassaemia can be lethal in early childhood, and although  International Thalassaemia Day has come and gone, awareness is paramount.   Andrew…
Corporate Reputation of Pharma Companies for 2018 – The Patients‘ Perspective

Corporate Reputation of Pharma Companies for 2018 – The Patients‘ Perspective

What did 1,500 patient groups from different countries and therapy areas think of pharmaceutical companies in 2018? To what extent did these companies meet patients‘ expectations?   A recent survey…
Gene Therapy for β-Thalassaemia Approaches European Market Approval

Gene Therapy for β-Thalassaemia Approaches European Market Approval

Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s…
World Hemophilia Day 2019

World Hemophilia Day 2019

World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of…
TIF leads the way in creating a Community Advisory Board (CAB) in Europe for thalassaemia and sickle cell disease

TIF leads the way in creating a Community Advisory Board (CAB) in Europe for thalassaemia and sickle cell disease

  ANNOUNCEMENT:   Dear friends and esteemed collaborators, The Thalassaemia International Federation (TIF) since its establishment in 1986 has been a pioneer in providing the patients’ perspective in all health-related…
Egypt celebrates the ITD 2019 with an International Scientific Conference in Cairo

Egypt celebrates the ITD 2019 with an International Scientific Conference in Cairo

  The Egyptian Thalassaemia Association (ETA),  in celebration of this year’s International Thalassaemia Day, is organizing the 20th International Thalassaemia Day Conference to be held in Cairo on May, 1-2,…
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