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Author Archives: tifwp

Blood safety & donation

Visual taken from WHO, World Blood Donor Day 2017 Regular blood transfusions have been a central aspect of the treatment of thalassaemia since the 1960s. As blood transfusion is a lifelong treatment for thalassaemia, the Thalassaemia International Federation (TIF) advocates for the promotion and development of policies by national health authorities ...

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EXPRESS IT OUT! by Nitya Gupta

Hi guys, hope you all are doing well. This week I had a painful prick while giving sample, on asking “is it paining really hard” I simply replied nah all okay. Later I find myself wondering when was the last time I truly shared the real extent of my pain? ...

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THALASSAEMIA: Yesterday, Today, Tomorrow by Maria Hadjidemetriou

It was the early 70s, I was 2 1/2 years of age when my pediatrician told my parents I had Mediterranean Anemia. I grew up in Astoria, a Greek enclave in Queens and that’s how my disorder was called. My parents, immigrants from Cyprus, had limited command of the English language, and the news ...

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THALASSAEMIA IN OUR EYES by Anton Skafi

Few days ago there was a about thalassaemia on this chat about thalassaemia whether it is a blessing or not, and the dark side of thalassaemia. At that moment I was with a friend, Loizos Pericleous, who is a thalassaemic as well. he said that he has written an article ...

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LIVING WITH THALASSAEMIA by Nitya Gupta

It’s international thalassemia week and what could be a better topic than sharing experiences. So, I am sharing tad bit of my way of living with thalassemia. Living with thalassemia is no less than a roller coaster ride. Just when you think your counts are doing good, ferritin is in ...

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ACCEPTING YOURSELF by Nitya Gupta

I don’t want to sound preachy at all, the reason why am writing this article is recently I overheard I apologize for it, two mothers of Thalassemia patients talking “I never share his Thalassaemia status with anybody ,look at him,her son, he looks so normal”, though I never gonna know ...

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GIVING BIRTH by Rita and Andrew Rodricks

We are proud to announce the birth of our twins, Dylan and Ellie, born on the 19th June 2013 at North Middlesex Hospital. I am 44 years old, with thalassemia major; and we had been trying for 7 years to have a baby. It was hard continuing with IVF (both ...

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Clinical Trials and updates

Clinical trials are experiments or observations carried out in clinical research, designed to answer specific questions about new treatments such as novel vaccines, drugs etc. for further study and comparison.

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World Health Organization

The Thalassaemia International Federation (TIF) works in official relations with the World Health Organization (W.H.O.), since 1996 and more specifically with the Chronic Diseases and Health Promotion Department (CHP).

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