TIF’s Board of Directors Member and Expert Patient, Mr. George Constantinou, and TIF’s collaborators Dr. phil Eva-Maria Knoll and Dr. Anne Yardumian, were delegated to visit Austria on 11-13 April, 2019, a country of special focus for the THALIA project, due to the fact that it has become a ...

In its most severe form and without adequate care, thalassaemia can be lethal in early childhood, and although  International Thalassaemia Day has come and gone, awareness is paramount.   Andrew Obenshain, Head of Europe at gene therapy company bluebird bio, looks into what it means to live with thalassaemia, with ...

  A comprehensive article by Carsten W. Lederer (PhD), Petros Patsali (PhD), Panayiota Papasavva (MD, MSc), Thessalia Papasavva (PhD) and Marina Kleanthous (PhD, Head of the MGTD), on the thalassaemia carrier status of Cypriots, and the therapy developments in the country.        

What did 1,500 patient groups from different countries and therapy areas think of pharmaceutical companies in 2018? To what extent did these companies meet patients‘ expectations?   A recent survey conducted by Patient View unveils the patients‚ perspective on the reputation and performance of 46 companies in the healthcare industry, ...

Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s Expert Advisor, Dr. Carsten Werner Lederer, explores this critical issue in his article, by highlighting the recent conditional approval for ...

World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together ...

  ANNOUNCEMENT:   Dear friends and esteemed collaborators, The Thalassaemia International Federation (TIF) since its establishment in 1986 has been a pioneer in providing the patients’ perspective in all health-related areas including policy-making, research, clinical trials, drug development etc, in a transparent manner, as laid out by its Code of ...

  The Egyptian Thalassaemia Association (ETA),  in celebration of this year’s International Thalassaemia Day, is organizing the 20th International Thalassaemia Day Conference to be held in Cairo on May, 1-2, 2019. Renowned international and national scientists working in the field, among which Dr. Frempong, one of the pioneers of sickle ...