Cypriot psychologist and politician to take over from Vytenis Andriukaitis on November 1 Stella Kyriakides has got the nod as EU Commissioner for Health, making her part of a strong female presence in the new structure of the next European Commission. Kyriakides, one of 13 women commissioners from 27, replaces ...

A TIF delegation visit to Germany took place on 04 – 05 July 2019. The Delegation Team was comprised of Mr George Constantinou (TIF Secretary) and Dr Eva-Maria Knoll (TIF collaborator in Austria and the Maldives). The team was accompanied by Mr. Zabihullah Safai (Board Member of SAM Deutschland e.V. ...

  The Food and Drug Administration (FDA) will review an approval application for a drug designed to target the root cause of damage from sickle cell disease (SCD). South San Francisco, California-based Global Blood Therapeutics announced Thursday that the FDA had accepted its application seeking accelerated approval for Voxelotor, an oral drug ...

  Thalassaemia is a hereditary blood disease that CAN be prevented! But in what ways? ΤΙF’s latest educational video shines a spotlight on the essential aspect of the disease’s prevention, still challenging  in numerous countries across the world. Our goal? To further improve understanding and knowledge of the prevention’s vital ...

  Recent scientific developments in gene therapy for β-thalassaemia have brought hope that multi-transfused β-thalassaemia patients will, in the very near future, have a chance and a choice for a one-time final cure and a life without the need for treatment. The number of ongoing gene therapy clinical trials has ...

  An educational leaflet aiming to strengthen the knowledge and understanding of patients with thalassaemia and other haemoglobin disorders across the world on most aspects relevant to gene therapy. English

Companies involved in human gene editing have entered the ethical debate about the controversial technology, issuing a joint declaration that DNA must not be altered in a way that passes genetic changes on to future generations. The Alliance for Regenerative Medicine (ARM), an international group representing the cell and gene ...

  The Committee for Medicinal Products for Human Use (CHMP), the European Medicines Agency’s (EMA) committee responsible for human medicines, has recently adopted a positive opinion, recommending the granting of a marketing authorisation for the medicinal product “Deferasirox Mylan“, intended for the treatment of chronic iron overload due to blood transfusions in patients with ...

134 million adverse events occur each year due to unsafe care in hospitals in low- and middle-income countries, contributing to 2.6 million deaths annually! Safety in health systems is a major global concern due to the enlarging numbers of people suffering avoidable harm while receiving healthcare. Recognizing the urgency of ...

  The “FAiTh- Fight Against Thalassemia“ patients & parents Association just published their 1st year activity report, after being officially registered as a trust! Read the activities report here: