This section is dedicated to alpha (α-) thalassaemia. THE MAJOR ALPHA (α-) THALASSAEMIAS ARE: HbH disease α-thalassaemia Hydrops Foetalis (=Hb Bart’s Hydrops Foetalis) Many diseases in humans are caused by abnormalities in the blood and these are categorized according to the component of the blood which is affected: white cell ...

The World Health Organization has presented the Dr Lee Jong-wook Memorial Prize for Public Health to TIF.

The Thalassaemia International Federation (TIF) is delighted to announce the organisation of the 14th International Conference on Thalassaemia & Haemoglobinopathies & 16th TIF International Conference for Patients & Parents.

Coal India Ltd. under their CSR activity in coordination with the Ministry of Health and Family Welfare, Govt. of India has approved an HSCT project for the cure of thalassemia patients. They would like to help 200 patients in a year. Thalassemics India has been given an opportunity to coordinate this ...

Patients’ stories of health care harm touch people’s hearts. The stories of the experiences of how patients and families can and do turn tragedy into compassion and motivation for change inspire people and help to raise awareness of the need to improve patient safety and health care quality.

Congratulations to India for moving forward! Two major advancements announced: The release of “Guidelines on “Prevention and Control of Haemoglobinopathies in India” by the Ministry of Health and Family Welfare, Govt. of India. We note that 2 out of the 26 contributors are from Thalassemics India.

Important Note: The latest Clinical Trial updates can be found in the link below.   April 2017 update Luspatercept (ACE-536): A novel agent that increases haemoglobin by promoting erythropoiesis (differentiation and maturation of late-stage erythrocyte precursors). Phase 2 data in adults with β-thalassaemia shows sustained increase in haemoglobin levels with ...

As from 2016, Thalassemia International Federation (TIF) has established a new kind of Award to be included in TIF’s Awards Scheme the ‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’. This Prize will be awarded on a biannual basis in the context of a  General Assembly or an International Conference ...