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أرشيف الوسم : Featured

New and Updated Data on Key Thalassaemia & SCD Pipeline Therapies at the American Society of Hematology (ASH) 2019 Annual Meeting – 7-10 December 2019

  Celgene Corporation, Acceleron Pharma, Sangamo Therapeutics & Agios Pharmaceuticals are expected to present new and updated data on the progress of key ongoing therapies for thalassaemia and sickle cell disease (SCD) in the 61st American Society of Hematology Annual Meeting to take place in Orlando, Florida, 7-10 December 2019. ...

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Deferasirox Mylan: A new generic drug for the treatment of iron overload in β-thalassaemia major obtained approval by the EMA

  The European Medicines Agency’s (EMA) has recently granted marketing authorisation for the medicinal product ”Deferasirox Mylan”, intended for the treatment of chronic iron overload due to blood transfusions in patients with β-thalassaemia major, non-transfusion-dependent thalassaemia syndromes and other anaemias. The manufacturer of this medicinal product is Mylan S.A.S. ”Deferasirox Mylan” will be ...

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US government & Gates Foundation pledge $200 million to bring gene therapies to patients with Sickle Cell Disease & HIV

  The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to speed the development of affordable gene therapies for sickle cell disease (SCD) and the human immunodeficiency virus (HIV) on a global scale. The collaboration between the NIH and the Gates Foundation sets ...

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High-Level Thalassaemia & Sickle Cell Disease Healthcare Professionals Summit – 1 & 2 November 2019

After the successful Capacity Building Workshop for Patient Organizations & Patients with thalassaemia in Hamburg, Germany, TIF will be traveling to Thessaloniki, Greece for a High-Level Thalassaemia & Sickle Cell Disease Healthcare Professionals’ Summit, to be held on 1-2 November 2019. Seeking to inform the healthcare community working in Europe ...

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As survival increases in β-thalassemia, renal complications emerge

  In a scientific paper recently published in Hematology, researchers discussed the most common pathophysiologic and clinical manifestations of renal disease in patients with beta thalassaemia. “In recent years, the life expectancy of patients with thalassaemia has increased, and this has allowed previously unrecognized renal complications to reveal themselves,” said ...

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The future of genome editing in Europe – Bringing together the views of government, industry, patient communities, and civil society’ representatives

  Genome editing is a breakthrough healthcare technology which has the potential to notably change treatment options, largely influence current healthcare models, and impact patients in clinical trials worldwide. The science is advancing rapidly, promising considerable increases in the efficacy and precision of genome editing products with potentially curative treatments ...

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TIF joined the Celgene’s Blood Transfusion Round Table Discussion in Brussels

On September 26, a Blood Transfusion Multi-Stakeholder Round Table Discussion was organised in Brussels by Celgene Corporation, featuring numerous scientists, haematologists, and patient organisations’ representatives. Dr. Androulla Eleftheriou, TIF Executive Director, and Mrs. Lily Cannon, TIF Operations Manager, represented the Federation in this meeting. The discussion drew attention to issues ...

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