We are elated to announce that the theme for the
International Thalassaemia Day (ITD) 2022 is
“Be Aware. Share. Care: Working with the global community as one
to improve thalassaemia knowledge.’’
Be Aware. Share. Care.
This International Thalassaemia Day we recognize and celebrate the power of knowledge.
The International Thalassaemia Day (ITD) 2022 theme is an open call to action to all supporters to promote awareness about thalassaemia and its global impact and share essential information and knowledge to support the best possible health, social and other care of patients with this disease.
The theme seeks to inspire every individual to contribute, at the personal level, to the fight against thalassaemia and serves as a powerful reminder that everyone has a substantial role to play and a responsibility to act.
Ignorance is not bliss
Today, despite the ever-rising global incidence of thalassaemia and in the absence or lack of effective, nationally-coordinated prevention programmes in most countries affected by the disorder, awareness and knowledge about even the basics of the condition’s prevention and management remain largely confined amongst the general public, including carriers of the disorder and/or patients themselves.
Unawareness, lack of disease-specific knowledge and poor health literacy are even more striking in developing countries of the world, where more than 80% of patients with thalassaemia are born and live! They not only have a major impact on health outcomes, but can also be divisive in society and affect quality of life.
We must enable patients and the community at large to have equitable access to knowledge and resources that will strengthen their capacity to take preventative action, change attitudes towards carriers and/or patients with the disease, and better safeguard and manage their own health.
Making change together
Improving awareness about thalassaemia is a good place to start. However, it is equally important to transfer and share reliable information and knowledge across different languages and cultures, making it accessible to people even in the most remote and underserved areas and communities of the world.
The only way to achieve this is if we act collectively!
Be part of the International Thalassaemia Day 2022 and help transform the lives of millions of people across the globe!
Can’t wait to get social for the International Thalassaemia Day 2022?
Use the below hashtags and link your activities to TIF’s!