Other Resources

As the numbers of people infected by the COVID-19 steadily increases in the UK, the United Kingdom Thalassaemia Society (UKTS) provides patients with advice on how to protect themselves and their families from contracting the virus.

Read here the Latest Information on COVID-19 & Haemoglobinopathies in the UK HERE

 

The United States Department of Health and Human Services (HHS), in partnership with the American Society of Hematology (ASH) and SickleinAfrica, and with the participation of the World Health Organization (WHO), jointly hosted a webinar on strengthening Sickle Cell Disease (SCD) efforts during the COVID-19 pandemic and beyond, on June 29, 2020.

The 90-minute webinar highlighted current knowledge on the impact of COVID-19 on health care systems and access to care for individuals living with SCD.

Watch the Full Webinar HERE

View the Webinar Slides HERE

This Rare Disease International statement is a message from the global rare disease community and offers recommendations for policy makers and authorities.

It comprises input from various bodies and patients themselves that reflects the needs, concerns and actions of the rare disease community with regard to the COVID-19 response and recovery.

Read the Full RDI Statement HERE

The Sickle Cell Disease Association of America (SCDAA) and its Medical and Research Advisory Committee continue to provide timely updates to their advisories on COVID-19 and sickle cell disease (SCD).

AABB has recently developed a useful toolkit with important information about coronavirus and blood donation, in which examples of optional documents that align with FDA’s communication are provided. These examples could be used by blood collection centers, electing to implement optional precautionary measures for blood donors.

Read the AABB Toolkit HERE.

A presentation by Liz Klings, MD, Center for Excellence in Sickle Cell Disease, The Pulmonary Center, Boston University School of Medicine, with a special focus on the COVID-19 potential implications for sickle cell disease patients.

View the Full Presentation HERE

TIF’s Medical Advisor, Dr Michael Angastiniotis, featured in a news report on COVID-19 and Haemoglobinopathies for the Australian online magazine ”Hospital & Healthcare”.

Read the Full News Report HERE

In the context of the COVID-19 pandemic, the EBMT, a collaborative peer network of professionals working in the field of clinical bone marrow transplantation and cellular therapy, has put together a series of webinars with other sister organisations.

Watch the EBMT COVID-19 Webinars HERE

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