الرئيسية » أرشيف الكاتب: tifwp (صفحة 7)

أرشيف الكاتب: tifwp

Information to patients

The necessity to amend the Directive on the Information to Patients on Prescribed Medicinal Products (2001/83/EC) arose after the submission of the Commission, on 20 December 2007, of a Communication concerning the “Report on current practices with regard to the provision of information to patients on medicinal products” to the ...

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Blood safety & donation

Visual taken from WHO, World Blood Donor Day 2017 Regular blood transfusions have been a central aspect of the treatment of thalassaemia since the 1960s. As blood transfusion is a lifelong treatment for thalassaemia, the Thalassaemia International Federation (TIF) advocates for the promotion and development of policies by national health authorities ...

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Renzo Galanello Fellowship Programme 2017

OUR SPECIALIST TEAM: Prof John Porter, Supervisor Dr Perla Eleftheriou, Coordinator and many other valuable colleagues. FUNDING: A stipend of $2000 USD/month for each successful candidate, which intends to cover the successful candidate’s accommodation, daily transportation and basic living expenses. Any expenses above this amount will be the responsibility of the ...

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Renzo Galanello Fellowship Programme 2016

We feel extremely privileged and delighted to provide the official completion report of the last TIF – Renzo Galanello Fellowship which took place between 3rd of October – 30th of November 2016 through the Joint Red Cell Unit of the Haematology Department of the University College London Hospital (UCLH) in ...

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EXPRESS IT OUT! by Nitya Gupta

Hi guys, hope you all are doing well. This week I had a painful prick while giving sample, on asking “is it paining really hard” I simply replied nah all okay. Later I find myself wondering when was the last time I truly shared the real extent of my pain? ...

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THALASSAEMIA IN OUR EYES by Anton Skafi

Few days ago there was a about thalassaemia on this chat about thalassaemia whether it is a blessing or not, and the dark side of thalassaemia. At that moment I was with a friend, Loizos Pericleous, who is a thalassaemic as well. he said that he has written an article ...

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LIVING WITH THALASSAEMIA by Nitya Gupta

It’s international thalassemia week and what could be a better topic than sharing experiences. So, I am sharing tad bit of my way of living with thalassemia. Living with thalassemia is no less than a roller coaster ride. Just when you think your counts are doing good, ferritin is in ...

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ACCEPTING YOURSELF by Nitya Gupta

I don’t want to sound preachy at all, the reason why am writing this article is recently I overheard I apologize for it, two mothers of Thalassemia patients talking “I never share his Thalassaemia status with anybody ,look at him,her son, he looks so normal”, though I never gonna know ...

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