Mission & Objectives
Our mission is the development and establishment of National Control Programmes for the prevention and quality treatment of thalassaemia and other haemoglobin disorders in every affected country.
Our vision is to establish equal access to quality health care for every patient with thalassaemia and other haemoglobin disorders across the world.
TIF works towards:
- Establishment of new and the promotion of existing national patient/parent associations for a strong patient/parents voice.
- Adoption of an International Thalassaemia Day (on the 8th May) – Awareness and sensitization of all (policy makers, carriers, patients, parents, health professionals and the community at large).
- Development of a network of collaboration with national, European and international:
- Thalassaemia and other disease-specific patient organizations
- Medical and scientific communities involved in the field
- Research institutes and medical centres of excellence
- Official health related bodies/organizations/agencies
- Pharmaceutical industries
- Coordination of and participation in national, European and international projects for improving and strengthening worldwide the:
- Medical and other care
- Social integration and quality of life
- Knowledge and education of health professionals, patients and parents
- Awareness of patients on their rights
- Safety and adequacy of blood
- Networking, partnership, collaboration between involved stakeholders
- Development of educational/communication/awareness programmes for health professionals in the field, patients and parents and the community at large, including:
- The organisation of local, national, regional, European and international workshops, conferences, seminars and meetings
- The preparation, publication, translation and free distribution of educational and awareness material
- The development of a postgraduate university course on haemoglobinopathies (e-MSc)
- The publication of a quarterly issued TIF Magazine
- Development of a website
- The establishment of an Expert Patients Programme
- The adoption since 1994 of the International Thalassaemia Day – 8th May