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Patient Solidarity Day 2017 #PSD2017

Patients have the right to be engaged as key partners, empowered to play a genuine and meaningful role in shaping decisions about their own health. This Patient Solidarity Day, advocates from across the world will be standing united in recognition of the significant need for, and benefit of, empowered and informed patients. Patient empowerment will ...

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Alpha thalassaemia

This section is dedicated to alpha (α-) thalassaemia. THE MAJOR ALPHA (α-) THALASSAEMIAS ARE: HbH disease α-thalassaemia Hydrops Foetalis (=Hb Bart’s Hydrops Foetalis) Many diseases in humans are caused by abnormalities in the blood and these are categorized according to the component of the blood which is affected: white cell ...

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1st Cardiology Symposium on Thalassaemia

The 1st Cardiology Symposium on Thalassaemia that took place on 17-18 June 2017 in Thessaloniki Greece concluded in great success. The programme was divided into a doctors’ scientific group of sessions to which patients were able το participate and a Capacity-Building group of sessions offered exclusively to patients.

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2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies

We are delighted to share with you that the 2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies was organized by the Thalassaemia International Federation (TIF) was completed with great success between the 11th and the 12th November 2016 in Amman (Jordan) in the context of TIF’s renowned educational program ...

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2nd Pan-Asian Conference on Haemoglobinopathies

The 2nd Pan-Asian Conference on Haemoglobinopathies was organised by the Thalassaemia International Federation (TIF), in collaboration with the National Institute of Hematology & Blood Transfusion (NIHBT) and the Vietnam Thalassaemia Association (ViTA), under the auspices of the Ministry Health of Vietnam, and took place on 26 & 27 September 2015. This ...

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