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Tag Archives: Patients

Patients and Healthcare Professionals, do you report side effects?

EMA Survey on the safety of medicines and on the reporting of adverse drug reactions. Survey available at: https://ec.europa.eu/…/EMA-survey-on-reporting-adverse-drug… Tags: #patientsafety #SideEffects #pharmacovigilance.   TIF’s position: The Thalassaemia International Federation (TIF) has focused attention for some time now and continues to do so, on the need for more strengthened and coordinated actions towards ...

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Patients for Patient Safety – Spring 2017

Patients’ stories of health care harm touch people’s hearts. The stories of the experiences of how patients and families can and do turn tragedy into compassion and motivation for change inspire people and help to raise awareness of the need to improve patient safety and health care quality.

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1st Cardiology Symposium on Thalassaemia

The 1st Cardiology Symposium on Thalassaemia that took place on 17-18 June 2017 in Thessaloniki Greece concluded in great success. The programme was divided into a doctors’ scientific group of sessions to which patients were able το participate and a Capacity-Building group of sessions offered exclusively to patients.

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2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies

We are delighted to share with you that the 2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies was organized by the Thalassaemia International Federation (TIF) was completed with great success between the 11th and the 12th November 2016 in Amman (Jordan) in the context of TIF’s renowned educational program ...

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Alpha thalassaemia

This section is dedicated to alpha (α-) thalassaemia. THE MAJOR ALPHA (α-) THALASSAEMIAS ARE: HbH disease α-thalassaemia Hydrops Foetalis (=Hb Bart’s Hydrops Foetalis) Many diseases in humans are caused by abnormalities in the blood and these are categorized according to the component of the blood which is affected: white cell ...

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