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1st Cardiology Symposium on Thalassaemia

The 1st Cardiology Symposium on Thalassaemia that took place on 17-18 June 2017 in Thessaloniki Greece concluded in great success. The programme was divided into a doctors’ scientific group of sessions to which patients were able το participate and a Capacity-Building group of sessions offered exclusively to patients.

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2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies

We are delighted to share with you that the 2nd Pan-Middle East Conference on Thalassaemia & other Haemoglobinopathies was organized by the Thalassaemia International Federation (TIF) was completed with great success between the 11th and the 12th November 2016 in Amman (Jordan) in the context of TIF’s renowned educational program ...

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2nd Pan-Asian Conference on Haemoglobinopathies

The 2nd Pan-Asian Conference on Haemoglobinopathies was organised by the Thalassaemia International Federation (TIF), in collaboration with the National Institute of Hematology & Blood Transfusion (NIHBT) and the Vietnam Thalassaemia Association (ViTA), under the auspices of the Ministry Health of Vietnam, and took place on 26 & 27 September 2015. This ...

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Clinical trials Updates – July 2017

Last update: July 2017 Luspatercept A novel agent that increases haemoglobin by promoting erythropoiesis. More specifically it promotes the differentiation and maturation of late-stage erythrocyte precursors by acting as a ligand trap for members of the TGF-β superfamily, the increased signaling of which inhibits erythrocyte maturation. This mechanism of action ...

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Patients and Healthcare Professionals, do you report side effects?

EMA Survey on the safety of medicines and on the reporting of adverse drug reactions. Survey available at: https://ec.europa.eu/…/EMA-survey-on-reporting-adverse-drug… Tags: #patientsafety #SideEffects #pharmacovigilance.   TIF’s position: The Thalassaemia International Federation (TIF) has focused attention for some time now and continues to do so, on the need for more strengthened and coordinated actions towards ...

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