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Clinical trials Updates – July 2017

Last update: July 2017 Luspatercept A novel agent that increases haemoglobin by promoting erythropoiesis. More specifically it promotes the differentiation and maturation of late-stage erythrocyte precursors by acting as a ligand trap for members of the TGF-β superfamily, the increased signaling of which inhibits erythrocyte maturation. This mechanism of action ...

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Patients and Healthcare Professionals, do you report side effects?

EMA Survey on the safety of medicines and on the reporting of adverse drug reactions. Survey available at: https://ec.europa.eu/…/EMA-survey-on-reporting-adverse-drug… Tags: #patientsafety #SideEffects #pharmacovigilance.   TIF’s position: The Thalassaemia International Federation (TIF) has focused attention for some time now and continues to do so, on the need for more strengthened and coordinated actions towards ...

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Clinical trial update (April 2017)

Important Note: The latest Clinical Trial updates can be found in the link below.   April 2017 update Luspatercept (ACE-536): A novel agent that increases haemoglobin by promoting erythropoiesis (differentiation and maturation of late-stage erythrocyte precursors). Phase 2 data in adults with β-thalassaemia shows sustained increase in haemoglobin levels with ...

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1st Cardiology Symposium on Thalassaemia

The 1st Cardiology Symposium on Thalassaemia that took place on 17-18 June 2017 in Thessaloniki Greece concluded in great success. The programme was divided into a doctors’ scientific group of sessions to which patients were able το participate and a Capacity-Building group of sessions offered exclusively to patients. Mr Panos ...

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