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EXCLUSIVE WEBINAR | Guidelines for the Management of a-Thalassaemia |14 March 2024
📌 Webinar Title: Guidelines for the Management of α-Thalassaemia 📌 Date & Time: Thursday, March 14, 2024, 13:00 Bangkok / 07:00 Paris / 22:00 PST This session aims to…
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TIF News
TIF PATIENTS & HEALTHCARE PROFESSIONALS CAPACITY BUILDING WORKSHOP | 16-19 May 2024
Organized within the framework of TIF’s internationally acclaimed educational programme, the workshop offers a prime opportunity for both physicians and patients to engage in meaningful knowledge exchange concerning the newest…
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ELEVATING AWARENESS | 29 February Is Rare Disease Day
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…
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BREAKING NEWS | TIF’s Collaboration with WHO Extended to 2027
Our enduring collaboration was newly endorsed by WHO’s Executive Board at its 154th session in January 2024, demonstrating our significant and ongoing contribution to WHO’s strategic health objectives. This extension…
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ADVOCACY IN ACTION | Highlights from the TIF Meeting with Greek Health Minister, Adonis Georgiadis
A productive meeting between the Greek Minister of Health, Mr. Adonis Georgiades, and a Thalassaemia International Federation (TIF) delegation took place on February 7, 2024. The discussions centered on longstanding…
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NEW WAVE OF LEADERSHIP | WHO Appoints Regional Directors for Eastern Mediterranean, South-East Asia, and Western Pacific Regions
These influential professionals were selected by Regional Committees and confirmed by the Executive Board. Beginning their roles on 1st February 2024, Dr. Hanan Hassan Balkhy will take charge as Regional…
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BREAKING | Vertex and CRISPR’s Gene-editing Therapy Casgevy Receives Early FDA Approval for β-Thalassaemia Treatment
Just one month prior, Casgevy made history as the first CRISPR gene editing therapy to enter the US market when it was approved for sickle cell disease. Now, the FDA…
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EXCLUSIVE WEBINAR | Guidelines for the Management of Non-Transfusion Dependent β-Thalassaemia
📌 Webinar Title: Guidelines for the Management of Non-Transfusion Dependent β-Thalassaemia 📌 Date & Time: Friday, February 02, 2024, 15:00 CET Recognizing the Clinical Relevance of NTDT Non‐transfusion‐dependent thalassaemias…
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A YEAR IN RETROSPECT | Global Public Health Achievements and Challenges in 2023
We applaud the remarkable strides in eradicating diseases and infections, such as ending the COVID-19 public health emergency and intensifying efforts to eliminate polio. Additionally, we celebrate the progress in…
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