EU Policies & Directives
TIF participates actively in the development and/or amendment of policies at the international and European level, thus ensuring that the voice of the national and global thalassaemia communities are taken into consideration by legislators and policy makers at the national, regional and international level.
TIF actively engages in the process of developing position papers on key issues which concern patients with thalassaemia, seeking to maintain and improve their quality of life and access to treatment.
In line with its mission to ensure recognition of the rights of thalassaemia patients and safeguard their implementation, TIF writes and promotes official statements on key issues of patient concern, seeking to maintain and improve their quality of life and access to treatment. Regular delivery venues of TIF statements are the World Health Assembly (WHA) and other WHO meetings.
WHA71_Prevention and Control of Non Communicable Diseases – Joint statement