Top Stories:
Home » News » TIF Global Survey 2017 on the quality of healthcare services available for the treatment of thalassaemia and sickle cell anaemia: Patients’ questionnaire – We need your opinion

TIF Global Survey 2017 on the quality of healthcare services available for the treatment of thalassaemia and sickle cell anaemia: Patients’ questionnaire – We need your opinion

TIF is conducting a survey on the quality of treatment and care for patients with thalassaemia and sickle cell disease, inviting patients from all around the world to participate.
Our aim is to document the patients’ voice about the quality of treatment available and lobby for a better quality of treatment for patients with thalassaemia and sickle cell disease around the world.

Deadline for completion:
30 October 2017

Read more

Read more

The milestones accomplished over the past years, especially concerning the clinical management of thalassaemia, have been the result of the collaborative efforts between the national governments, the medical and scientific communities, the Thalassaemia International Federation (TIF) and TIF Member Patient Associations. Conversely however, in recent years we are witnessing a global rising of inequality of access to quality healthcare and patient-centred healthcare systems, as defined by the UN Sustainable Development Goals 2030, particularly in the field of haemoglobinopathies.

Wishing to better tailor TIF’s assistance and support in YOUR COUNTRY, we invite you and the members of your Association to complete a short survey. Our target is to collect as many responses as possible to give the opportunity to present to the world the true voice of patients with thalassaemia and sickle cell disease globally. With our collaborative efforts, we are hopeful to achieve even more for the thalassaemia family!

Help us to help you!

If you have sickle cell anaemia:

If you have thalassaemia:

Create your survey with SurveyMonkey

Related documents

The data collected will not only assist the prioritisation and tailoring of TIF’s support but will also allow TIF to advocate more effectively to the government of your country to improve access to and quality of fundamental services necessary for improving quality and free access to appropriate clinical management of thalassaemia for ALL!

HELP US HIGHLIGHT THE IMPORTANCE OF THE PATIENT VOICE IN DECISION-MAKING.

HELP US FIGHT ANY INEQUALITY OF ACCESS TO QUALITY HEALTHCARE AND PATIENT-CENTRED HEALTHCARE SYSTEMS IN THE FIELD OF HAEMOGLOBINOPATHIES.