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International Thalassaemia Day 2015

This year’s theme:

Enhancing partnership towards patient-centred health systems: good health adds life to years

Healthcare is changing. Patient needs are changing. Government regulations are changing. With an evolving landscape and overwhelming expectations, the transformation of healthcare systems is becoming all the more necessary to meet the needs of this changing environment.

Providing patient-centred quality healthcare is critical to transforming health. TIF reinitiates its commitment to be involved in a variety of initiatives and collaborations to improve healthcare quality and make it more patient centred. Collaborations with other healthcare entities, nationally, regionally, and internationally are a vital pillar of TIF’s work. Through maintaining the quality and standards of TIF’s educational programme, TIF continues to fight for patientcentred healthcare systems that can respond to the historic realignments of our industry and economy.

If we can ensure that people are living healthier as well as longer lives, the opportunities will be greater and the costs to society less. As we react to the changing landscape and create real value for patients and their families, we serve as a model for all healthcare organizations struggling to do the same. The future presents an opportunity for us all, and TIF strives to lead the way.

Furthermore, we are excited to announce the creation of our new website, dedicated to the 8th of May Activities!

Visit event website

Gala Dinner “Precious Rubies”, Presidential Palace, Nicosia, 6 May 2015

The evening of 6 May 2015 was landmarked by an exquisitely formal‪ Musical Evening and ‪Gala Dinner which was organized by the‪‎Thalassaemia International Federation (TIF) for the International Thalassaemia Day honoured every year on 8 May. The event, entitled “Precious Rubies”, took place at the Presidential Palace in Nicosia, under the auspices and in the presence of His Excellency President of the Republic of Cyprus, Mr. Nikos Anastasiadis, and the Honourable First Lady, Ms. Andri Anastasiadou.

Present at the formal ‪‎thalassaemia ‎Musical Evening and ‪‎gala Dinner, were the Royal Couple of the United Arab Emirates (UAE), His Highness Sheikh Dr Sultan Bin Khalifa Al Nahyan – Advisor to the Resident of UAE , President of Sultan Bin Khalifa Al Nahyan Humanitarian and Scientific Foundation and Her Highness Sheikha Sheikha Bint Seif Al Nahyan – Vice President of the Foundation, Chairperson of Emirates Thalassemia Society and Board Member of TIF.

Ministers, Ambassadors, Diplomatic personalities, representatives of Official international, regional and national Bodies, health and non-health related, international health experts, and a large number of state officials, patient organizations and scientific medical professionals both in Cyprus and abroad attended this event.

The formal ‪thalassaemia ‎Musical Evening and ‪gala Dinner started with the opening speeches of Mr. Panos Englezos, President of TIF and of His Excellency Mr. Nikos Anastasiadis, President of the Republic of Cyprus. During the President’s speech, the Dr Lee-Jong Wook Memorial Prize for Public Health prize which was granted by the World Health Organisation to TIF, was officially announced. This award, which is the highest prize in the field of public health, is granted internationally by the W.H.O. to NGO’s with outstanding contribution in this field.

The musical programme was marked by a musical journeythrough the notes of the Cyprus Young Strings Soloists under the Artistic Direction of Prof Matheos Kariolou, Artistic Director of the Musical Talent Development Program, Cyprus Ministry of Education and Culture, and the piano accompaniment of Jana Drhov. It then continued with a colourful voyage into the sounds of well known songs from France, Greece, Italy, Brazil, Spain, Portugal and much more. Finding Edith Piaf, Nat King Cole, Manos Hadjidakis, Yves Montand, Rita Hayworth, Frank Sinatra and many more great performers of our times. The voice of the Paris-based singer and songwriter Vakia Stavrou combined with the piano of Argyro Christodoulides, blended brio with sweet nostalgia”

We would like to express a special thank you to Dr Erato Kozakou-Marcoullis, Former Minister of Foreign Affairs of Cyprus, whom TIF has appointed Ambassador for Thalassaemia, and Mr George Theophanous, our Musical Ambassador for their support and contribution to advocating the rights of thalassaemia patients .

Blood Donation dedicated to the International Thalassaemia Day!

Blood donation drives dedicated to the International Thalassaemia Day! The Cyprus Blood Centre in collaboration with the Nicosia Municipality has decided to devote the blood drives held on the 8th of May to the Thalassaemia International Federation and to the International Thalassaemia Day.

TIF’s Photography Contest for the International Thalassaemia Day 2015!

We are proud to announce our International Photography Contest 2015, has ended and the selection process is underway! The aim of the contest was to create awareness about thalassaemia in the context of the International Thalassaemia Day.

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Deadline:

The deadline for this year’s competition has ended on Tuesday 31 March 2015.

Subject:

The subject of this year’s photography contest was based on this year’s theme for the International Thalassaemia Day 2015, which is “Enhancing Partnerships Towards Patient-Centred Health Systems: Good Health Adds Life to Years!”

The prizes granted by Thalassaemia International Federation for this competition were the following:

The first winner: $500
The second winner: $300
The third winner: $100

Stay tuned as the winners of this year’s photography contest will be announced shortly on our social media.

Video Challenge Competition

We are thrilled to present our ‎Video Challenge Competition winners! We are so excited to have received so many original submissions that blew us away! Each video highlights the story behind great individuals affected by thalassaemia, whether patients or parents, and the incredible struggles they have endured to achieve the greatness they exemplify today.

The submissions awarded the most points by voters were declared winners and are presented below:

 


Winner of the First Prize
Marsha De Salvatore
Title: Comedy Therapy


Winner of the Second Prize
Josephine Bila
Title: Thalassaemia or Not, We Are All Born Magnificent

 

Winner of the Third Prize
Name: Shaheen Essani Rao
Title: Zaid and His Signatures

 

We would like to thank each and every one of you for your participation. We could not have done it without your help! Hear their voices on our website!

Campaign kit

See the 8th of May video: We proudly present to you our video, created for the International Thalassaemia Day, “Precious Rubies” underscoring the preciousness of blood and in particular of the red blood cells within it, which have the same shape and colour as rubies. The preciousness of expensive rubies, are associated with the preciousness of blood, but also with that of the contribution of each involved stakeholder in the fight for the treatment of thalassemia.

Anthem for Thalassaemia: We would like to present to you the official anthem for thalassaemia, composed by Mr. George Theofanous, world renowned composer, was presented for the first time during the event. The lyricist of the anthem is Mr. Stavros Stavrou and it was sung by the children from the Musical Workshop of Mr. George Theofanous.