The 2nd Pan-Asian Conference on Haemoglobinopathies was organised by the Thalassaemia International Federation (TIF), in collaboration with the National Institute of Hematology & Blood Transfusion (NIHBT) and the Vietnam Thalassaemia Association (ViTA), under the auspices of the Ministry Health of Vietnam, and took place on 26 & 27 September 2015.
This exciting event aimed towards fostering a forum of unprecedented interaction for patients/parents and health professionals, while providing an excellent opportunity to network, update, and upgrade knowledge on haemoglobin disorders, and bring together hundreds of participants from a wide range of disciplines from across the region.
TIF REGIONAL CONFERENCE OBJECTIVES
- To educate, empower and create core groups of patients in each country to support and strengthen their role in monitoring their own disease;
- To develop the skills and capacities of patients for strengthening their advocacy role for achieving productive participation in decision-making at the national and regional level;
- To develop a robust infrastructure for national patients’ associations, making them truly supportive to their patients and their families at the national level.
FOR HEALTH PROFESSIONALS
- To develop a network of collaborators from each country, ensuring a more tailored support by TIF at the national level;
- To develop a core group of expert medical specialists across disciplines relevant to the multidisciplinary care of haemoglobinopathies, aiming to support the pillars of TIF’s educational programme, which are:
– the preparation, translation and distribution of publications and educational material;
– the scientific programmes in educational events;
– the development of our contribution to academic courses led or supported by TIF.
FOR POLICY MAKERS
- To provide a forum of interaction for policy makers to support and recognise the health priorities of this disease based on case examples, cost effectiveness and the disease burden in many countries.