Top Stories:
Home » Conferences » 2nd Pan-Asian Conference on Haemoglobinopathies 26 & 27 September 2015

2nd Pan-Asian Conference on Haemoglobinopathies 26 & 27 September 2015

The 2nd Pan-Asian Conference on Haemoglobinopathies was organised by the Thalassaemia International Federation (TIF), in collaboration with the National Institute of Hematology & Blood Transfusion (NIHBT) and the Vietnam Thalassaemia Association (ViTA), under the auspices of the Ministry Health of Vietnam, and took place on 26 & 27 September 2015.
This exciting event aimed towards fostering a forum of unprecedented interaction for patients/parents and health professionals, while providing an excellent opportunity to network, update, and upgrade knowledge on haemoglobin disorders, and bring together hundreds of participants from a wide range of disciplines from across the region.

 

TIF REGIONAL CONFERENCE OBJECTIVES

FOR PATIENTS

  • To educate, empower and create core groups of patients in each country to support and strengthen their role in monitoring their own disease;
  • To develop the skills and capacities of patients for strengthening their advocacy role for achieving productive participation in decision-making at the national and regional level;
  • To develop a robust infrastructure for national patients’ associations, making them truly supportive to their patients and their families at the national level.

FOR HEALTH PROFESSIONALS

  • To develop a network of collaborators from each country, ensuring a more tailored support by TIF at the national level;
  • To develop a core group of expert medical specialists across disciplines relevant to the multidisciplinary care of haemoglobinopathies, aiming to support the pillars of TIF’s educational programme, which are:
    – the preparation, translation and distribution of publications and educational material;
    – the scientific programmes in educational events;
    – the development of our contribution to academic courses led or supported by TIF.

FOR POLICY MAKERS

  • To provide a forum of interaction for policy makers to support and recognise the health priorities of this disease based on case examples, cost effectiveness and the disease burden in many countries.

 

Abstract Book
Patients’ / Parents’ Programme
Scientific Programme