Publications

Alpha-thalassaemia major

Alpha-thalassaemia major

  Update: 08 January 2021 No update available.   Update: 05 November 2020 Researchers at the University of California – San Francisco (UCSF) are conducting a Phase I clinical trial…
IMR-687

IMR-687

Update: 08 January 2021 No update available.   Update: 05 November 2020 The first thalassaemia patient has been dosed in the FORTE clinical trial – a Phase 2b clinical trial…
Explaining Gene Therapy in thalassaemia (2020)

Explaining Gene Therapy in thalassaemia (2020)

  The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document, prepared by the Thalassaemia International Federation , is a compilation of information exclusively for Sickle Cell Disease patients with regard to the coronavirus pandemic.
COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

A TIF-compiled document aiming to provide a division of risk levels for thalassaemia and SCD patients with regards to the ongoing COVID-19 pandemic.
MONTHLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

MONTHLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

All the latest updates of TIF’s Vaccinations & Therapeutic Drugs Guide for COVID-19 gathered in one single document.
Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

TIF has compiled a list of studies/clinical trials for developing drugs and vaccines for the COVID-19 Pandemic, which is by no means exhaustive as research in this area is dramatically…
Blood & COVID-19 (2020)

Blood & COVID-19 (2020)

An informational guide about blood adequacy and safety during the COVID-19 Pandemic, compiled on the basis of official recommendations from internationally recognized bodies.
A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A  Haemoglobinopathy Patient Care Pathway suggesting changes to be made during the outbreak of COVID-19 in the admittance of patients to haemoglobinopathy day care centres /units /clinics.
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