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Patients’ stories

Express it out!

Hi guys, hope you all are doing well. This week I had a painful prick while giving sample, on asking “is it paining really hard” I simply replied nah all okay. Later I find myself wondering when was the last time I truly shared the real extent of my pain? ...

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Thalassemia: Yesterday, Today, Tomorrow

It was the early 70s, I was 2 1/2 years of age when my pediatrician told my parents I had Mediterranean Anemia. I grew up in Astoria, a Greek enclave in Queens and that’s how my disorder was called. My parents, immigrants from Cyprus, had limited command of the English language, and the news ...

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Thalassaemia as seen in the eyes of some thalassaemics

Few days ago there was a about thalassaemia on this chat about thalassaemia whether it is a blessing or not, and the dark side of thalassaemia. At that moment I was with a friend, Loizos Pericleous, who is a thalassaemic as well. he said that he has written an article ...

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Living with thalassaemia

It’s international thalassemia week and what could be a better topic than sharing experiences. So, I am sharing tad bit of my way of living with thalassemia. Living with thalassemia is no less than a roller coaster ride. Just when you think your counts are doing good, ferritin is in ...

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Accepting yourself

I don’t want to sound preachy at all, the reason why am writing this article is recently I overheard I apologize for it, two mothers of Thalassemia patients talking “I never share his Thalassaemia status with anybody ,look at him,her son, he looks so normal”, though I never gonna know ...

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The Need for Safe Blood Donations for Beta-Thalassemia Patients

Riyad Elbard has been receiving monthly blood transfusions since he was diagnosed with beta-thalassemia at the age of one. Because of the condition, his body doesn’t produce enough hemoglobin to carry oxygen to his organs and tissues. Few treatment options exist for beta-thalassemia, so for patients like Elbard, a safe, ...

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Giving birth

We are proud to announce the birth of our twins, Dylan and Ellie, born on the 19th June 2013 at North Middlesex Hospital. I am 44 years old, with thalassemia major; and we had been trying for 7 years to have a baby. It was hard continuing with IVF (both ...

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