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India News: Thalassemia Patients Advocacy Group (PAG)

TIF is delighted to receive the following exciting news on the launch of the Thalassemia Patients Advocacy Group during the “Seminar on the Policy Interventions for the Evolving Needs of Thalassemics in India” on 16th Sep 2017 at New Delhi. At the presence of officials from the Ministry of Health, the Indian Red ...

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Patients and Healthcare Professionals, do you report side effects?

EMA Survey on the safety of medicines and on the reporting of adverse drug reactions. Survey available at: https://ec.europa.eu/…/EMA-survey-on-reporting-adverse-drug… Tags: #patientsafety #SideEffects #pharmacovigilance.   TIF’s position: The Thalassaemia International Federation (TIF) has focused attention for some time now and continues to do so, on the need for more strengthened and coordinated actions towards ...

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Patients for Patient Safety – Spring 2017

Patients’ stories of health care harm touch people’s hearts. The stories of the experiences of how patients and families can and do turn tragedy into compassion and motivation for change inspire people and help to raise awareness of the need to improve patient safety and health care quality.

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Clinical trial update (April 2017)

Important Note: The latest Clinical Trial updates can be found in the link below.   April 2017 update Luspatercept (ACE-536): A novel agent that increases haemoglobin by promoting erythropoiesis (differentiation and maturation of late-stage erythrocyte precursors). Phase 2 data in adults with β-thalassaemia shows sustained increase in haemoglobin levels with ...

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