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Author Archives: tifwp

Thalassaemia specific electronic patients’ records

A pilot study at the Nicosia Thalassaemia Centre has been finalised, with the uploading of data relating to 390 patients with β-thalassaemia major. The results of the data analysis were presented at a workshop held on 20 October 2011 in Cyprus. This project has allowed TIF to validate the value of such ...

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Epidemiology data bank on haemoglobin disorders

The epidemiology project of TIF focuses on the collection of information on carrier rates, anticipated births and current status of haemoglobinopathy control strategies within health systems in the different country members of TIF, for β- and α-thalassaemiaσ, HbE and Sickle Cell Disease (SCD), and combinations constitute the main focus of ...

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Haemoglobinopathy Reference Centres

This is one of TIF’s new projects undertaken for the year 2013 and its goal is to develop a database for Haemoglobinopathy reference centres across the world, mapping the services they provide to patients. This is an extension to the information compiled by ENERCA-3 project and the deliberation of EUCERD, ...

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Telemedicine

This project focused on building confidence increasing acceptance of telemedicine solutions amongst patients and health professionals. The official launch of Chain of Trust took place in Brussels, in which TIF participated. The project has two core Work Packages, focused on the following objectives: to improve available knowledge of the specific ...

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