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Author Archives: tifwp

Mr Anton Skafi

Mr Anton Skafi’s involvement in Thalassaemia began when he led the ‘Thalassaemia Self Help Group’ in Jerusalem. Later, he joined the thalassaemia Patients Friends Society (TPFS) – Palestine as a Board Member and occupied the position of Deputy Chairman for a few years. He participated in many awareness campaigns lecturing ...

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Mr Loris Angelo Brunetta

Mr Loris Angelo Brunetta born in Genova (Italy), is founding member of Comitato Ligure Giovani Thalassemici, created in 1983 (which since June 2000 has been renamed Associazione Ligure Thalassemici), and that constitutes amongst the founding associations of the Thalassaemia International Federation. Elected as President of the Associazione Ligure Thalassemici for ...

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Ms Fatemeh Hashemi

Born in 1960, Mrs Hashemi is married and has two children. She graduated with a BSc in Biology and is currently student of Warsaw University for a Ph.D in International Affairs. Mrs. Hashemi has been the President of Charity Foundation for Special Disease, since its establishment in 1995, and has ...

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Ms Gulush Mustaphayeva

I am Gulush Mustaphayeva. I was born on November 3, 1974. I am married and my daughter is thalassaemia patient. I teach English at the University of Foreign languages. Also, I am a vice president of “Savab Dűnyasi” Thalassaemia Association in Azerbaijan. I have been working in the Association since ...

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Mrs Mouna Haraoui

Mrs Haraoui, former first Lady of Lebanon, is the founder and president of the Board of Trustees of the Chronic Care Center in Lebanon, the only specialized institution for the treatment and follow-up of childhood diseases namely Thalassemia and Insulin Dependent Diabetes. She has presided many other social foundations in ...

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Mr Ramli Mohd Yunus

Mr Yunus is married with two children and has studied Mass Communication and Administrative Management at various Universities in Malaysia. His involvement with thalassaemia begins with his wife’s condition, being a patient with thalassaemia intermedia. He currently manages a rubber plantation and owns a chain of Indian food restaurants in ...

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Dr Christina Stephanidou

Dr Christina Stephanidou has participated in the organization of many conferences about thalassaemia for the education of doctors, patients and parents, and of events for the promotion of blood donation. Reaching patients and parents all over the world, supporting them and uniting them in the fight against thalassaemia. The best ...

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Mr Ivan Dimitrov Ivanov

Ivan Dimitrov Ivanov has been a TIF Board Member since 2014. He is an engineer in Industrial management, and has a Master of Financial and Business management from the Technical University-Sofia as well as a Ph D in Health management, from the Medical University –Plovdiv, Bulgaria. He is currently a ...

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Dr Duru Malyali

Dr Duru Malyali, a surgeon by profession, is a founding member of the Thalassemia Patient & Parent Association (TADAD) in Istanbul – the first association founded by parents of thalassaemia patients in Turkey. As President of TADAD he has succeeded in spreading awareness and knowledge about thalassaemia in the community ...

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